Preview Mode Links will not work in preview mode


Welcome to the Empowered Patient Podcast with Karen Jagoda.  This show is a window into the latest innovations in digital health and the changing dynamic between doctors and patients.

Topics on the show include

  • the emergence of precision medicine and breakthroughs in genomics
  • advances in biopharmaceuticals
  • age-related diseases and aging in place
  • using big data from wearables and sensors
  • transparency in the medical marketplace
  • challenges for connected health entrepreneurs

The audience includes researchers, medical professionals, patient advocates, entrepreneurs, patients, caregivers, solution providers, students, journalists, and investors.

Feb 18, 2020

Maria Picone, co-founder TREND.Community and Antonio Maltese, student with Huntington's Disease talk about the challenges of finding valid information about rare diseases, the value of community support in discovering novel approaches to treatments, providing evidence to pharmaceutical companies about little understood symptoms, and advocating for awareness about rare diseases particularly during Rare Disease week and Rare Disease Day February 29.

#rarediseases #huntingtonsdisease


Download the transcript here