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Welcome to the Empowered Patient Podcast with Karen Jagoda.  This show is a window into the latest innovations in digital health and the changing dynamic between doctors and patients.

Topics on the show include

  • the emergence of personalized medicine and breakthroughs in genomics
  • advances in biopharmaceuticals
  • age related diseases and aging in place
  • using big data from wearables and sensors
  • transparency in the medical marketplace
  • challenges for connected health entrepreneurs

The audience includes researchers, medical professionals, patient advocates, entrepreneurs, patients, caregivers, solution providers, students, journalists, and investors.

Apr 20, 2020

Maria Picone, Founder, TREND.community and Shelley Bowen, Founder and Director, Barth Syndrome Foundation explain the challenges doctors face in diagnosing a rare disease like Barth Syndrome, the need to educate doctors about symptoms and warning signs of rare diseases, the need for genetic testing to further inform...


Apr 20, 2020

Maria Picone, Founder, TREND.community and Shelley Bowen, Founder and Director, Barth Syndrome Foundation explain the challenges doctors face in diagnosing a rare disease like Barth Syndrome, the need to educate doctors about symptoms and warning signs of rare diseases, the need for genetic testing to further inform...


Feb 25, 2020

Kinnari Patel, Chief Operating Officer, Rocket Pharmaceuticals discusses how Rocket is focused on creating new options for patients contending with rare genetic diseases.  Rocket is advancing several gene therapies for rare pediatric diseases and Kinnari provides insights into how the company is tackling the unique...


Feb 25, 2020

Kinnari Patel, Chief Operating Officer, Rocket Pharmaceuticals discusses how Rocket is focused on creating new options for patients contending with rare genetic diseases.  Rocket is advancing several gene therapies for rare pediatric diseases and Kinnari provides insights into how the company is tackling the unique...


Feb 18, 2020

Maria Picone, co-founder TREND.Community and Antonio Maltese, student with Huntington's Disease talk about the challenges of finding valid information about rare diseases, the value of community support in discovering novel approaches to treatments, providing evidence to pharmaceutical companies about little understood...