Jun 20, 2023
Jessica Ackerman, the Vice President for Strategic Partnerships and Impact at Responsum Health, is focused on the insights that patients can provide drug companies and other people newly diagnosed or suffering from a chronic condition. Responsum is a digital-based educational community providing accurate scientific information, peer support, access to clinical trials, and a path by which drug companies can get real-world data.
Jessica explains, "Every disease focus that we have started has come from a partnership, some vested interest, from either a commercial sponsor or a pharmaceutical company, to build this robust community. Their interest is to gain the patient's voice and get insights, market research data, and real-world data from patients and family members to understand their gaps in care. So we have created a number of communities, like kidney disease CKD. We have glaucoma. We have pulmonary fibrosis, which is considered a rare disease, so we are in the rare disease and orphan disease space as well."
"We also have a long COVID community. That's a newer one that was met purely out of need. Patients diagnosed with long COVID undergo a lot of stigma and have trouble finding resources that are credible. We also have a menopause community that has many, many women who are feeling empowered to figure out what's going on for a lot of unmet needs as well. We have a number of communities, and we're always willing and able to build new communities. Part of what we're doing here is building new communities."
#Responsum #PatientExperience #PatientEmpowerment #DigitalHealth #PatientEducation #LongCOVID #HealthEquity #ClinicalTrials #HealthLiteracy #RareDisease
